Life as a princess
June 14th 2012 2:52 am
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We have lost track as things have gotten very crazy at our house. Marielle's birthday party went off last week-end. It was a carnival theme fully equipped with a snow cone machine and old fashion popcorn machine . The kids had their faces painted and fun having water gun battles and jumping in the jumping house. Marielle managed to get her face painted and than wanted to go back to bed. She was happy knowing her friends were having a good time. She was awoken to blow out her candles and to open presents. It was very hot so the heat wasn't the best for her. Monday morning she had to be back at the hospital for a 3 day stay for a chemo procedure but on Sunday evening she spiked a high fever and had to go in early. Due to that they did not do the procedure but she had to stay for observation. She came home yesterday but has to go back today. They will recheck blood and possibly do the procedure today which will be at least another 3 day stay ! Oh she is very tired of all of this .. but we all trudge forward. I have been babysitting with Hudson ( her brother) since school is out and i must say he is such a joy to be with. His eyes are so expressive and we have had great fun just relaxing at home playing good old fashion board games. It has done my soul good !
June 5th 2012 3:50 am
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Just to keep you up to date , Marielle is doing pretty good at the moment. She hasn't been able to get the regular chemo treatment due to her kidney function, so she has been on a less toxic routine. They tested her kidneys yesterday to see if she can get back on track and they will get the results today. Her birthday bash is for this Saturday as it was cancelled 2 weeks ago because she was in the hospital. She is tentatively scheduled to have her compromised kidney that she was born with removed on June the 20.... we will keep you posted ! Thanks again for all the support !
May 25th 2012 1:23 am
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Hi everyone.. we got Buttercups blood results yesterday and boy is it much improved ....Her BUN went from 165 to 85 , creatine 3.5 to 2.5 and her phosphorous went from 10.8 to 5.4 .. amazing that diet and medication change can make such a huge difference in 2 weeks.. things are still high but so much better. She may have a slight tremor but most days she isn't having them at all. The doctor says the increase in her medication is helping the blood carry more oxygen to her brain .. THANK GOD !! so for now we are on an up road !! woohoo ! If we can get her itching under control that would be a bonus.. we are switching antihistamines and he suggested trying plain old baby shampoo since the prescription shampoo and oatmeal shampoo doesn't seem to help at all.. Thank you all for all the continued support !
May 23rd 2012 11:10 am
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I had to go back to see Dr. Ferguson today my cardiologist to follow up from my visit 2 weeks ago. Heres the positive news.. i had chest x-rays that showed no fluid around heart or lungs.. woohoo !!! Mom was worried as i have been coughing and gagging like crazy ! my heart is huge .. but we already knew that. They took blood which we will get results tomorrow afternoon. We are SO HAPPY that my tremors have just about totally stopped., ( some days not at all ) which indicates that the new dosage of medication is working.. woohooo ! He upped another medication today to help keep the blood flowing in the proper direction and to keep oxygen going to my brain so i won't have those terrible tremors ! Depending on blood results he may add another new medication that won't hurt my already compromised kidney issue. He feels that my kidney issue is coming from all the medication that they must use to help my heart .. they cut back on my lasix and we stopped the digoxin as it was making me not want to eat. I also have been so itchy .. and we will be trying to figure out if it is environmental or what ..depending on my blood report we may try a new medication for the itching, if it works than we will know it is plain ole allergies.. I am resting like a princess on my pillow .. and we will update after we hear back on the blood report tomorrow. Thanks everyone !
May 23rd 2012 2:41 am
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HI folks.. Marielle had her pic lines removed , a new port put in , chemo in the spine ( which they had problems with but finally got it done with several doctors assisting) and they did 2 test on her kidneys to determine if her kidneys could take the next phase of treatment. As it turned out the results weren't what they had hoped for , so they will repeat the test next week and hopefully they will get the results needed to proceed with her treatment. This is very important as she must stay on the protocol to battle the leukemia . The good news is she will be home for her birthday ! yipppeee !!!!! Thank you for all the prayers .. you are the best support team around ! We will keep you posted ..
May 20th 2012 3:02 am
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Not to much to report which is the GREAT NEWS !!! Marielles procedure for last Wednesday was postponed because she needed to get blood . The good news is the weather here has been terrific and she has been feeling better with the new blood that was given so she has been able to be some what of a little girl again !! Yipppeeee !!!! The bad news is the procedures will be done this week as long as her blood level is good ! They have to remove pic lines , put in a new port .. and possibly do a laproscopic procedure on her kidney .. i'm praying it is postponed as her birthday is next week-end and of course there is a huge party planned !
May 11th 2012 5:57 pm
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Just want to send a Mothers Day hug to all our dogsters moms ! we sure hope everyone has a fabulous day !
May 9th 2012 11:51 am
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First we have to tell you what has been going on .. but please no rosettes at this time .. honest ... a week ago i started becoming very picky about what i wanted to eat .. which i have never ever done.. after 2 days mom had me at the vet and we got terrible news that i am in kidney failure.. yes we are devastated but not giving up .. my renal number all just about tripled since my last blood work up a little over 4 months ago. We immediately switch my diet to science diet KD and a new home cooked low protein , low phosphorous meal. I actually really like it and have been eating like crazy and drinking so that is all good news. !!! Now on Tuesday morning i started having wee episodes/ tremors that last maybe 2 to 3 seconds.. a few each day . Today we went to cardiology to get checked out. Heres the good news..my blood pressure is perfect , my lungs and lung pressure is good, no fluid around the heart or lungs and for the most part all my leaky valves are stable. Now my left atrial chamber is slightly more enlarged from the heart failure. Dr. Ferguson feels these episodes are snycopal (meaning fainting) . but why??? in large dogs they wear a heart monitor to see what is going on with the electric part of the heart..but i can't do that .. so heres what they are doing.. they took me off one of my heart drugs.. increased another, reduced my lasix, and are adding another new drug. We can't rule out the possibility that the tremors are neurologically related. ..but with my history we can assume that it is coming from heart disease. I look good , sleeping well, eating well , still love my carriage walks and will bark like crazy to let you know i want to go now pawlease and am giving kisses ..i am not allowed to do steps anymore and should try to be as quiet as possible... mom asked the dreaded question .. what was my prognosis.. well lets just say we have time and there are still things they can do to keep me with mom and dad for awhile longer ! Please no rosettes at this time .. just add me to your prayer list and ask St. Francis to watch over and protect me . If you don't see us as much this is why .. it may just be that i need moms attention .
May 5th 2012 6:28 pm
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woohoo Marielle finally came home yesterday !!! and in grand style .. her daddy has a friend that owns a limo service.. and he insisted that she be picked up in the limo !!! I would have loved to have been at the hospital to see the faces on all the patients .. They were probably wondering who is this important child or family ! LOL !!! Anyways they had a good night all snuggling up and watching movies.. this afternoon she announced she was bored already ..LOL ! Monday she has to be back at clinic to start the next round of treatment .. so keep those prayers coming !
April 27th 2012 2:26 pm
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This is straight from Marielles journal !! OMG .. we can't contain ourselves !
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BUTTERCUP * Moms Angel Girl *