Life as a princess

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Marielle update 5/20

May 20th 2012 3:02 am
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Not to much to report which is the GREAT NEWS !!! Marielles procedure for last Wednesday was postponed because she needed to get blood . The good news is the weather here has been terrific and she has been feeling better with the new blood that was given so she has been able to be some what of a little girl again !! Yipppeeee !!!! The bad news is the procedures will be done this week as long as her blood level is good ! They have to remove pic lines , put in a new port .. and possibly do a laproscopic procedure on her kidney .. i'm praying it is postponed as her birthday is next week-end and of course there is a huge party planned !

Thanks again for all the prayers and we will update as we get news !

Hugs,
Pat & Buttercup

 

Happy Mothers Day ! 5/13/2012

May 11th 2012 5:57 pm
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Just want to send a Mothers Day hug to all our dogsters moms ! we sure hope everyone has a fabulous day !
More Than A Mother ....

When God set the world in place,
when He hung the stars up in space,
when He made the land and the sea,
then He made you and me.
He sat back and saw all that was good,
He saw things to be as they should.
Just one more blessing He had in store;
He created a mother, but whatever for?
He knew a mother would have a special place
to shine His reflection on her child's face.
A mother will walk the extra mile
just to see her children smile.
She'll work her fingers to the bone
to make a house into a home.
A mother is there to teach and guide,
a mother will stay right by your side.
She'll be there through your pain and strife,
she'll stay constant in your life.
A mother will lend a helping hand
until you have the strength to stand.
She'll pick you up when you are down,
when you need a friend she'll stick around.
A mother is one who listens well,
will keep her word; will never tell.
A mother never pokes or pries
but stands quietly by your side,
giving you the strength you need,
encouraging you to succeed.
A mother is one who can be strong
when you need someone to lean on.
You're more than a mother to me;
a reflection of Him in your face I see,
a love that knows no boundaries.
I'm glad that you chose to be
all this and more to me.
You share a love that knows no end,
you're more than my mother,
you are my friend.

Thank YOU ANimal Alliance for giving me the honor of being Buttercups mommy ! She makes everyday a sunny day just by being her mommy .. !! I Love you Buttercup !

 

My cardiology visit 5/9/2012

May 9th 2012 11:51 am
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First we have to tell you what has been going on .. but please no rosettes at this time .. honest ... a week ago i started becoming very picky about what i wanted to eat .. which i have never ever done.. after 2 days mom had me at the vet and we got terrible news that i am in kidney failure.. yes we are devastated but not giving up .. my renal number all just about tripled since my last blood work up a little over 4 months ago. We immediately switch my diet to science diet KD and a new home cooked low protein , low phosphorous meal. I actually really like it and have been eating like crazy and drinking so that is all good news. !!! Now on Tuesday morning i started having wee episodes/ tremors that last maybe 2 to 3 seconds.. a few each day . Today we went to cardiology to get checked out. Heres the good news..my blood pressure is perfect , my lungs and lung pressure is good, no fluid around the heart or lungs and for the most part all my leaky valves are stable. Now my left atrial chamber is slightly more enlarged from the heart failure. Dr. Ferguson feels these episodes are snycopal (meaning fainting) . but why??? in large dogs they wear a heart monitor to see what is going on with the electric part of the heart..but i can't do that .. so heres what they are doing.. they took me off one of my heart drugs.. increased another, reduced my lasix, and are adding another new drug. We can't rule out the possibility that the tremors are neurologically related. ..but with my history we can assume that it is coming from heart disease. I look good , sleeping well, eating well , still love my carriage walks and will bark like crazy to let you know i want to go now pawlease and am giving kisses ..i am not allowed to do steps anymore and should try to be as quiet as possible... mom asked the dreaded question .. what was my prognosis.. well lets just say we have time and there are still things they can do to keep me with mom and dad for awhile longer ! Please no rosettes at this time .. just add me to your prayer list and ask St. Francis to watch over and protect me . If you don't see us as much this is why .. it may just be that i need moms attention .

Love,
Buttercup and Mom !

 

5/5/12 Marielle is HOME !!!!!!!!!!!!!!!!!!!!!!

May 5th 2012 6:28 pm
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woohoo Marielle finally came home yesterday !!! and in grand style .. her daddy has a friend that owns a limo service.. and he insisted that she be picked up in the limo !!! I would have loved to have been at the hospital to see the faces on all the patients .. They were probably wondering who is this important child or family ! LOL !!! Anyways they had a good night all snuggling up and watching movies.. this afternoon she announced she was bored already ..LOL ! Monday she has to be back at clinic to start the next round of treatment .. so keep those prayers coming !

Love you all,
Pat & Buttercup

 

4/27/2012 The Miracle has happened !

April 27th 2012 2:26 pm
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This is straight from Marielles journal !! OMG .. we can't contain ourselves !

Praise God is the first thing out of my mouth!!! WE'RE IN REMISSION!! I'd scream it from the rooftop if I could leave her side but I am too excited to leave the room!!

I knew and trusted that He would make miracles happen and so He did!!

I have to keep this short because I can't see through my joyful tears!!!

Thank you all for your steady prayers, love and support!! We will keep you posted on the next step of treatment. They're looking for the non-nephro toxic chemo drugs that they can use.
We will still have dialysis today and be working on resolving her kidney failure.
More later, I have some calls to make..We Love you all!!

AND THIS IS THE SECOND POSTING FROM TODAY !

Can we handle more good news, of course we can!!! The pathology report just came back and shows no permanent damage, no irreparable damage to the kidneys!! So over the course of a few more days or weeks the creatinine will creep downwards on it's own. She will still be able to have a little help from the dialysis which is easy for her, at least it has been this week. We are looking at another week or so of dialysis and then resume the next phase of the chemo.
For those of you that don't know or haven't heard, with the leukemia diagnosis comes 2 1/2 years of chemotherapy. The protocol changes over time, but she is now in the phase called LTM, long term maintenance. We continue to ask for your prayers, love and support and give all the glory to God, the Master Healer!
We will continue to share our progress on this remarkable journey of faith with you all! xoxoxo


Thank you all for all the support over these past 4 months .. it is still a very long road .. but at least we are now on the right road !!

Love you all !

Pat & Buttercup

 

4/26 Marielle update

April 26th 2012 2:47 am
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Marielle had a good day yesterday .. but there seems to always be more concerning news. Today they are going to biopsy her kidneys. Her creatine is still rising even with the dialysis so they have to find out what is going on with them. She can not have anymore chemo or antibiotics until they get them responding. They are looking for inflammation within her weakened kidney that she was born with. If they find it than it is looking like they will have to remove it .. OMG !!!!!!!!! Her spirits remain good .. WOW ! what a lesson she is teaching us ! They will have the results on Friday sometime along with the results from her bone marrow.. Right now i am praying that the bone marrow shows the cancer is in remission .. than they can deal with the kidney issue !! Thank you all once again ! We will update soon as we hear !

Hugs,
Pat & Buttercup

 

4/25/2012 Thank YOU everyfur !Dogsters Diary pick of the- day 4/23/2012

April 25th 2012 2:28 pm
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woohooo . ...!!!!! i was one of dogsters daily diary picks and i received special gifts from , Bailey, Hershey and Winkie, Krickette, Amazing Grace, Lucy, and George and his family ! I can't thank you all enough for helping to make my day so special and my page pawsome ! MWAH ! You pups and secretaries are the best !
Kisses,
Buttercuppi !

 

4/22 evening update

April 23rd 2012 6:28 pm
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woohoo .. POP really works ! Marielle did fine with both the bone marrow biopsy today ( results in 3 days) .. and her first dialysis . Right now they aren't sure how often or for how long she will need to be on this .. but for the last week she has been un able to eat much or to go to the potty .. all a result of the kidneys failing. They are still trying to determine what has caused this .. They think possibly the powerful antibiotic they needed to treat her blood infection with or an inflammation internally with in her already compromised kidney that she was born with. She is in pediatric ICU for extra care for a few days .. but we visited with her this evening and she was in good spirits playing on her ipad ! We will continue to keep you posted and once again we THANK EACH AND EVERYONE OF YOU FOR YOUR CONTINUED SUPPORT !

HUGS,
Pat & Buttercup

 

4/22/ Marielle morning update

April 23rd 2012 9:37 am
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Hi Everyone.. First of all thank you all for following Marielles journey ! All the prayers are so appreciated as we can never have enough of them. I went to see Marielle last night and was so happy to see her sitting up in bed smiling and working on sticker art! Her mood was good and even got some laughs out of her ! Her school principal came to visit and i think it really cheered her up ! Her ANC numbers continue to climb which is great news.. but the bad news is so does her creatine .. so today they will do her bone marrow biopsy along with dialysis. She will than go to pediatric ICU until she can return to the A wing ! I will go this evening to the hospital and will post an update later !

Thanks again so much !
Pat & Buttercup

p.s. woohooo .. thank you all for the gifts on my page for DOTD !!! Mom will try to keep up !

 

4/21 From Marielles Mommy

April 21st 2012 5:29 pm
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This is so tuff.. i know many of you out there have a family member or your selfs that are fighting this awful disease . WE send prayers to you all also !Please continue to send prayers to Marielle !This is from her mommy

Well Marielle's creatinine went from 5.4 yesterday to 6.2 today, but on a graph they are seeing the increase slowing down. Her ANC was up to 1008 yesterday,yipppeeee, we haven't gotten it for today yet but they are expecting it's even higher. She received a 1/2 unit of blood last night & was restricted to a liter of fluids all day, which included blood products, IV fluids and drinks. Today they have lowered that restriction to 500 ml. The problem is that the kidneys are working too hard just to eliminate the fluids present, so by restricting the fluids the kidneys won't have to work so hard.
The plan now is to watch this number (creatinine) tomorrow morning & Monday morning and if it hasn't gone down they have her scheduled for 11am hemo-dialysis, which will be thru her juggler vein, and the bone marrow test at the same time. This will reduce the number of times she will be sedated.
They won't know until afterwards how many times or for how long the dialysis will take place. We are taking this one day at a time.
There was no visit from Katy Perry last night, or phone call but our friend Jon got something autographed and that we are grateful for, I'm sure she was disappointed but as we all know she is a trooper and got over it before she even went to sleep.
So far this morning was a little rough, there was bleeding at the PICC line site and it had to be re-dressed twice . She is resting now and hopefully will have a quiet day. This morning was one of the toughest for me watching her struggle and hurt just breaks my heart! She said "you DON'T know what it feels like" and in tears I told her that all Mommies feel everything their babies feel and it hurts me for her. She saw that I was being sincere and that calmed her down, she held hands with me and peace entered her heart and mind.
We will do nothing or whatever she wants today, my guess is another movie-a-thon day.
I can't thank you all enough for the continued prayers, God and your prayers are what is giving me the strength to help her, thank you, thank you, thank you!!
Have a great restful day all! xoxoxox

 
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