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Life as a princess

2/8/2010 A Funny song from Marielle !

so Marielle sang this song last night to her mommy .. her best friend taught it to her .. it will bring a smile to your face to if you can imagine 2 young girls sitting and singing as fast as they can .. LOLLOLLOLLOL !!!

Hi all,
O.K. So Marielle just sang a song or jingle to me and I told her I wanted to post it here, her friend Kylee taught it to her in one sitting!

Here goes...

Coca Cola went to town
Diet Pepsi knocked him down
Dr. Pepper helped him up
Now we're drinking 7-up
7-up caught the flu
Now we're drinking Mountain Dew
Mountain Dew fell off the mountain
Now we're drinking from the fountain
Fountain broke now we're drinking Cherry Coke
Cherry Coke lost it's cherry
Now we're drinking Loco Berry
Loco berry lost it's loco
Now we're drinking hot cocoa
Hot cocoa lost it's hot
Now we're drinking from a pot
Pot broke now we're drinking
Plain old Coke.

How funny was that! She's laughing all the while since I am a slow typist!! She said you have to say it real fast and it makes it even funnier.

2/7/12 Not in Remission yet

Marielles mommy posted this today in her caring bridge journal ..

Not yet.....

Hi All,
Well we're not in remission yet, the results came back this morning and since we are already here we will move on to the next phase of treatment. As I mentioned in an earlier post there was going to be an overnight visit this week regardless of the bone arrow results, so that will be tonight.
Tomorrow morning she will have a spinal tap done with the new chemo treatment, she will also start the 1st day of a 4 straight day treatment (with 4 intervals over the next 29 days) this is an IV push over 15-30 minute time span. This treatment will be much tougher on her little body, the rest of her hair will come out, she will likely experience a lot of nausea and vomiting and likely loss of appetite. We are thankful these haven't been side-effects so far but they're coming. This treatment plan is 56 days then the bone marrow test again at the end. This has been tough so far but will be getting tougher no doubt.
I have been talking to God since we got the news this morning and he assures me we're going to get through this and she will beat this damn cancer! Yup He doesn't care if I say damn!!!! Damn, damn, damn!!!! I crawled up on her bed with her and she just rubbed my arms and said, "I like keeping my eyes closed when they're in here talking, so they don't want me to talk." She is so strong and really amazes me more than words can describe!!! After the doctor left the room we talked and I told her I was sorry that she has to endure more of this and she said, "it's o.k. Mom, I'll be alright" what an angel!!!!!
So I went to get a cup of coffee when she went back to sleep, a parent who was also in the coffee shop overheard me on the phone in Au Bon Pain (the coffee shop downstairs). After I got back to the room, our nurse came in and said a parent on our wing heard me telling of the update of our daughter's condition and he gave a nurse a gift card to
Au Bon Pain to give to me. I started crying and hugged both of the nurses in our room and Marielle said, "why are you crying Mommy" and I answered (with a little help) "because God just talked to me and it made me cry tears of gratitude."
Well that's it for now, I am going to cuddle up on her bed with her for the afternoon. Please keep the prayers coming, not just for Marielle but for everyone affected by cancer, including the families. Will post again tonight. Love you all!!!

Thank you all for all the support !

pat & Buttercup

2/6/12 Back in the hospital

Hi everyone .. just a quick update on Marielle.. she had to go back to the hospital to get her sodium level checked yesterday , which was fine .. but she had spiked a fever again .. so she has been readmitted. They started antibiotics and she will have to stay another 48 hours...looks like another UTI infection or maybe the previous one never cleared up , she does have a kidney condition since birth .. we are wondering if all the chemo is just hard for her kidneys to process... don't know if she will be getting that baby tooth pulled this week or not .. poor child is so tired .. and is supposed to be starting physical therapy this week also !

We haven't forgotten to write our Thank yous here for all the wonderful cards and gifts ... but mom was to deliver them to her ..and of course will now wait until she gets home . We will make a list once she and Hudson open them and then post our Thank yous ! You all know who you are .. and honest .... we have never seen so much support and love ! AMAZING !

The Buttergirl and Pat