Life as a princess

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Moms visit with Marielle

January 26th 2012 2:13 am
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Mom visited Marielle and poor baby is so puffy from all the steroids ... her legs are very week and hurt her to walk .. but her appetite is good and her love for crafts are keeping her very busy . She has her home tutor now and is already ahead in her school work. She has 3 more chemo treatments , than she must undergo another bone marrow biopsy to see if the cancer has gone into remission yet. The biopsies are painful , but she is a real trooper. We will keep you posted !

The Buttergirl and her mommy

 

1/22/2012 Update on Marielle

January 22nd 2012 2:34 am
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Hi everyone ... with all the prayers Marielle is to come home sometime this morning. She not only had a UTI infection but also a kidney infection and a wee bit of pneumonia. She had to be on IV antibiotics for 24 hours with no reaction which has been the case.Her fever is gone . They did continue her treatment in the hospital adding a new chemo drug , so all those hats and wigs will be used asap ! She will be back at the hospital Tuesday for her next treatment . She is what we call * FORD STRONG* .. you see her daddy owns a auto repair business and you know how those Ford trucks are built .. hence * FORD STRONG* !!
Thank you all once again .. and we will continue to update !

Pat & The Buttergirl !

 

1/20/2012 Marielle update

January 20th 2012 5:34 pm
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Looks like Marielle has a UTI infection .. she will be in the hospital over the week-end. Still not sure if she received treatment today as scheduled .. as long as she is running a fever they don't normally give treatment .. Mom sent a text message for an update this evening .. but we haven't heard back so we are sure they are very busy and just not able to answer yet .. we will keep you all posted !

You all are the best support team ever !,
Pat & Buttercup

 

1/20/2012 MARIELLE UPDATE .. Test results

January 20th 2012 2:01 am
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The test results came back and things weren't what we expected. The cancer cells were reduced .. but not enough to but her in remission so they have extended what they call the induction period another two weeks, which means in 2 weeks she will have to have another bone marrow biopsy to check the results..Her hair is really falling out now , but she remains upbeat. Her tutor for home teaching was finally approved by the state ( she got her favorite teacher Miss Trish) and they had a one on one at home yesterday to lay out the plan of study ! .. but last night around 5:00 Marielle spiked a fever and had to be admitted to the hospital for observation. Looks like she will be there for at least 48 hours. She was supposed to get treatment today .. but not sure now. We will keep you posted .. keep those prayers a coming !

Pat & Buttercup

 

1/16/2012 Marielle update

January 16th 2012 4:58 pm
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The prayers have been working .. Thanks to everyfur ! Marielle has a second bone marrow biopsy tomorrow along with a spinal tap to see how well the treatment has worked this past month. Depending on what the result shows will determine the course of treatment for next month .. please keep her in your prayers tomorrow !

Now the update on my hubro.. He has his oral surgery last week and it was quite an operation. After 2 hours he went home with ice packs and a list full of instructions . Turns out the cyst may not have been what the surgeon thought it was so we are waiting for the biopsy to come back . He is recovering very well but the tooth that had the cyst wrapped around it required gently pealing it away from the major nerve in his jaw... he is having pain only on that side .. the other side seems to be doing well. 8 weeks of a soft diet no chewing at all ! WOWS ! we think he will get tired of milk shakes , soup, yogurt, pudding ... his favorite pizza will taste so good soon as he can chew !. We hope there hasn't been nerve damage which the surgeon said could happen ..so we are hopeful that it will calm down in a few more days ! Thanks once again for all the prayers and we will keep you posted !

Buttercup & Pat

 

1/10/2012 MARIELLE UPDATE

January 10th 2012 2:42 pm
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WOOHOOO.. THE PRAYERS ARE WORKING .. WE WILL LET YOU READ THE LATEST FROM MARIELLES JOURNAL !
Hi all, today was a fairly easy day. We took cousin Andrea with us so she could meet the clinic staff and hear what we hear and after Marielle's dose of the vincristine IV push (that's what they call it) we were able to go home. I just called to get the lab results for the morning blood work & they were fabulous!! I'll post 2 numbers to show why I say fabulous...her platelets are 131,000, normal is between 150,000-400,000. She would get a transfusion if under 45,000, last week was 87,000 and she last got a transfusion on 12/27 when it was only 36,000. That means her body is producing well on it's own!! Yippppeee....that bad blood is slowly being conquered! The other number is her ANC (absolute neutrophil count), this is the number of white blood cells that fight infections, normal is between 500-1500, the doctors are happy if it's over 500. Drumroll please........today it is 1540!!!!! Last Tuesday it was 800, on 12/27 it was only 300. This means that she is not at a high risk of getting an infection today!! Keep those prayers coming...they are obviously working!! Oh yeah and just wanted to mention, Marielle knows how to "pay it forward" already; Ms. Linda, our new friend in Michigan sent Marielle a new knitted hat.it was a little too big and Ms. Linda said to pass it on, so this morning Marielle gave it to her new friend Ms. Becky at the clinic and she said she knows just the teenager who would love to wear it, who is also a current chemo patient. God is good!! Thanks to you all for EVERYTHING! Tomorrow morning at 8:30 Mommy's friend Ms. Fern is going to cut Marielle's hair and she wants to donate it, then Thursday she gets her wigs. Yipppeeee, I think we'll all have a blue or purple streak in our hair after that, we'll see what she wants us to do.

KEEP THE PRAYERS COMING !!

BUTTERCUP & MOMMA PAT

 

1/5/2012 MARIELLE UPDATE

January 5th 2012 3:06 am
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WOOHOOO !! Marielles treatment on Tuesday went so well ! She only has to have the one treatment this week ! She wanted to go to the movies and her Dr.'s gave her permission to go ! They went at 9:30 at night in order to avoid the crowds due to her weakened immune system ! Looks like all the prayers are working .. please keep them coming ! Its a long road .. actually a treatment plan spanning over 2 1/2 years !

Grateful for the prayers,
Pat & Buttercup

 

1/2/2012 HAPPY NEW YEAR !

January 2nd 2012 2:50 am
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ANOTHER YEAR WOWS !! WISHING EVERYONE AN MOST HAPPY , HEALTHY NEW YEAR ! NOW JUST A QUICK UPDATE ON MARIELLE. SHE GOES BACK TOMORROW FOR ANOTHER CHEMO TREATMENT. SO FAR SHE IS TOLERATING THE TREATMENTS WELL AND HAS A MEGA APPETITE ! THEY TOLD HER MOMMY THIS WOULD HAPPEN , IT IS A RESULT OF THE STEROIDS SHE IS ON ! SO IF YOU WOULD CONTINUE THE PRAYERS WE WOULD REALLY APPRECIATED IT .!

HAPPY NEW YEAR !
BUTTERCUP & PAT

 

12/29/2011 Marielle First outpatient treatment

December 29th 2011 2:25 am
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Marielle had to be at the University of Maryland at 8:30 a.m. Tuesday morning for her first out patient treatment. She needed to get platelets and then she was given medication to make her sleep and was given chemo treatment in her spine again .. she seemed to handle it well , went home starving and ready to eat ! Yesterday her mommy said she was doing well, eating and drawing and watching T.V. We don't know how much we will be seeing her .. one she really needs her rest and 2 , her immune system is very weak .. so mommy and her mommy keep in touch trough text messages and phone ! It looks like all the prayers are working .. so keep them coming .. it is going to be a long year ahead !

Buttercup & Pat

 

12/27/2011 SO WHAT DID SANTA PAWS BRING YA ?

December 27th 2011 3:37 pm
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WOOHOO .. It is Tuesday after Christmas and mom is finally catching up ! What did Santa bring you ... well , i got 2 new coats ( one from Bailey Thank you so much !) .. a new sweater , a new sock monkey from LP .. Thanks LP , a new squeaky bone from The Sweetiepies , Thanks Sweetiepies, a beautiful framed picture of my self from the Boyzz, Thanks Boyzz .. mommy loves it ! a new pink stuffed squeaky and a warmer for the car seat or my stroller from Raja .. Thank you Raja ! I think i was a pretty good girl ! Mom plans on getting a picture soon of me with my stash ! Did i tell you i had an ear infection .. well i never got my Christmas grooming because mommy was and still is putting medicine in my ear .. so we will get a photo soon. Only one more day on the ear meds !
Marielle went today for her first out patient treatment. She had to have another spinal tap where they put the chemo right in her spine.. so she wasn't able to eat this morning.. mom received a text message saying all went fine and she was starving ! She did have to get platelets before her treatment so this extended the time they were at the hospital. I'm sure everyone will be exhausted this evening ! Thank you once again for the out pouring of love and support . We wish each and every family a most blessed , happy , healthy New Year !

Buttercup & Momma Pat

 
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