Life as a princess

2/7/12 Not in Remission yet

February 7th 2012 3:54 pm
[ Leave A Comment | 9 people already have ]

Marielles mommy posted this today in her caring bridge journal ..

Not yet.....

Hi All,
Well we're not in remission yet, the results came back this morning and since we are already here we will move on to the next phase of treatment. As I mentioned in an earlier post there was going to be an overnight visit this week regardless of the bone arrow results, so that will be tonight.
Tomorrow morning she will have a spinal tap done with the new chemo treatment, she will also start the 1st day of a 4 straight day treatment (with 4 intervals over the next 29 days) this is an IV push over 15-30 minute time span. This treatment will be much tougher on her little body, the rest of her hair will come out, she will likely experience a lot of nausea and vomiting and likely loss of appetite. We are thankful these haven't been side-effects so far but they're coming. This treatment plan is 56 days then the bone marrow test again at the end. This has been tough so far but will be getting tougher no doubt.
I have been talking to God since we got the news this morning and he assures me we're going to get through this and she will beat this damn cancer! Yup He doesn't care if I say damn!!!! Damn, damn, damn!!!! I crawled up on her bed with her and she just rubbed my arms and said, "I like keeping my eyes closed when they're in here talking, so they don't want me to talk." She is so strong and really amazes me more than words can describe!!! After the doctor left the room we talked and I told her I was sorry that she has to endure more of this and she said, "it's o.k. Mom, I'll be alright" what an angel!!!!!
So I went to get a cup of coffee when she went back to sleep, a parent who was also in the coffee shop overheard me on the phone in Au Bon Pain (the coffee shop downstairs). After I got back to the room, our nurse came in and said a parent on our wing heard me telling of the update of our daughter's condition and he gave a nurse a gift card to
Au Bon Pain to give to me. I started crying and hugged both of the nurses in our room and Marielle said, "why are you crying Mommy" and I answered (with a little help) "because God just talked to me and it made me cry tears of gratitude."
Well that's it for now, I am going to cuddle up on her bed with her for the afternoon. Please keep the prayers coming, not just for Marielle but for everyone affected by cancer, including the families. Will post again tonight. Love you all!!!

Thank you all for all the support !

pat & Buttercup

 
 

Leave A Comment | 9 people already have

Barked by: Coco Rose (Dogster Member)

February 7th 2012 at 5:05 pm

What sad news. We have been praying that things would turn around for Marielle not get harder on her.

We will continue to keep Marielle in our prayers.

Hugs and kisses,

Coco Rose, Puffy and mom
Barked by: Abby - Forever Loved (Dogster Member)

February 7th 2012 at 5:41 pm

My mom has tears in her eyes reading this. We are continuing to pray for Marielle and her family.
Barked by: Hershey (Dogster Member)

February 7th 2012 at 6:06 pm

Aw, that's disappointing news. We keep Marielle and her fambly in our prayers.
Barked by: Lulu (Dogster Member)

February 7th 2012 at 8:33 pm

I'm so sorry you're having to go through all this.
I'm thinking of you and holding positive thoughts.
Barked by: ♥ Anya ♥ (Dogster Member)

February 7th 2012 at 11:17 pm

What an amazing child Marielle is!
We will keep the family in our prayers and send you good thoughts.

~
Barked by: ♥ Anya ♥ (Dogster Member)

February 7th 2012 at 11:17 pm

What an amazing child Marielle is!
We will keep the family in our prayers and send you good thoughts.

~
Barked by: BUTTERCUP * Moms Angel Girl * (Dogster Member)

February 8th 2012 at 2:53 am

Thanks everyone !! After we posted this is got another update .. Marielles spirits were good and this is the song she was singing to her mom who posted it in her journal !
Hi all,
O.K. So Marielle just sang a song or jingle to me and I told her I wanted to post it here, her friend Kylee taught it to her in one sitting!

Here goes...

Coca Cola went to town
Diet Pepsi knocked him down
Dr. Pepper helped him up
Now we're drinking 7-up
7-up caught the flu
Now we're drinking Mountain Dew
Mountain Dew fell off the mountain
Now we're drinking from the fountain
Fountain broke now we're drinking Cherry Coke
Cherry Coke lost it's cherry
Now we're drinking Loco Berry
Loco berry lost it's loco
Now we're drinking hot cocoa
Hot cocoa lost it's hot
Now we're drinking from a pot
Pot broke now we're drinking
Plain old Coke.

How funny was that! She's laughing all the while since I am a slow typist!! She said you have to say it real fast and it makes it even funnier.

She still has her sense of humor !
Barked by: Hershey (Dogster Member)

February 8th 2012 at 7:24 am

BOL! BOL!! BOL!!!
Barked by: Amazing Grace (Dogster Member)

February 8th 2012 at 3:25 pm

Keeping all in our prayers....Marielle is an amazing child.


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