Barked: Tue Jun 30, '09 1:08am PST |
 |  |  |  | Oh, I know that Harley. I guess I just phrased it wrong. I mean something along the lines of there are many different things that can cause the same symptoms. When the diagnosis isn't cureable or treatable, you manage the symptoms. But there are some conditions that would preclude the use of certian medications that may normally be used.
For example, bipolar disorder can be caused by a brain malformation/malfunction or it can be caused by a thyroid problems. Technically, the latter is no longer bipolar disorder, but it presents the same symptoms and usually gives people the same label regardless of what is actually causing it. But for true bipolar disorder, the first step is usually to try lithium. Lithium can truly do wonders for people with bipolar I, but if you try it on someone who has a thyroid problem, it can really screw them up. The same thiing is reverse -- HRT is extremely bad for someone with "true" bipolar.
So, I guess that was what I meant. It seems to me that I read there are a few commonly used treatments for common dysautonomia symptoms that really shouldn't be used on those that have it. I react to most medications badly enough as it is; I don't want tp be given something that will definitely mess me up just because my HCPs aren't willing to actually give me a diagnosis. Does that make sense now?
I'm still seriously thinking of just going to the ER and demanding the tests. I don't know how well that would go over, but it's what I feel like doing, especially since one of the hospitals in the area has a program that would pay almost all of the bill. I have a horrible suspicion that they wouldn't listen to me and would just send me home if I tried, though. *sigh*
Of course, I almost did go to the ER over the weekend. I couldn't stop throwing up, and it had been going on for a few days. This happens to me occassionally, bouts of not being able to keep anything down -- I guess I would call it normal for me and not of any great concern. It always goes away on it's own, but I just wanted it to stop. Of course, I decided to wait to go until my hubby could take me, but then I was feeling better. Then I wasn't, but I don't want to go by myself. Meh.
It's good that you have an excuse... I guess maybe they think I sound like some hyperchondriac who just looked stuff up online. It's so stupid. I feel like showing them my IQ scores and asking them how they did. Maybe then they'd believe that I actually am intelligent. And I have taken medical course, so that's where I learned the jargon. It just makes more sense to me to be able to tell them in one word what I'm talking about versus a whole paragraph at least. |  |  |  |  |
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