The End is Near... Maybe

  
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Spike

Don't Berate,- Educate!
 
 
Barked: Tue Jun 30, '09 1:08am PST 
Oh, I know that Harley. I guess I just phrased it wrong. I mean something along the lines of there are many different things that can cause the same symptoms. When the diagnosis isn't cureable or treatable, you manage the symptoms. But there are some conditions that would preclude the use of certian medications that may normally be used.

For example, bipolar disorder can be caused by a brain malformation/malfunction or it can be caused by a thyroid problems. Technically, the latter is no longer bipolar disorder, but it presents the same symptoms and usually gives people the same label regardless of what is actually causing it. But for true bipolar disorder, the first step is usually to try lithium. Lithium can truly do wonders for people with bipolar I, but if you try it on someone who has a thyroid problem, it can really screw them up. The same thiing is reverse -- HRT is extremely bad for someone with "true" bipolar.

So, I guess that was what I meant. It seems to me that I read there are a few commonly used treatments for common dysautonomia symptoms that really shouldn't be used on those that have it. I react to most medications badly enough as it is; I don't want tp be given something that will definitely mess me up just because my HCPs aren't willing to actually give me a diagnosis. Does that make sense now?

I'm still seriously thinking of just going to the ER and demanding the tests. I don't know how well that would go over, but it's what I feel like doing, especially since one of the hospitals in the area has a program that would pay almost all of the bill. I have a horrible suspicion that they wouldn't listen to me and would just send me home if I tried, though. *sigh*

Of course, I almost did go to the ER over the weekend. I couldn't stop throwing up, and it had been going on for a few days. This happens to me occassionally, bouts of not being able to keep anything down -- I guess I would call it normal for me and not of any great concern. It always goes away on it's own, but I just wanted it to stop. Of course, I decided to wait to go until my hubby could take me, but then I was feeling better. Then I wasn't, but I don't want to go by myself. Meh.

It's good that you have an excuse... I guess maybe they think I sound like some hyperchondriac who just looked stuff up online. It's so stupid. I feel like showing them my IQ scores and asking them how they did. Maybe then they'd believe that I actually am intelligent. And I have taken medical course, so that's where I learned the jargon. It just makes more sense to me to be able to tell them in one word what I'm talking about versus a whole paragraph at least.
Harley, SD,- CGC, TDI

Super Service- Boy!
 
 
Barked: Sat Jul 4, '09 9:47am PST 
I think there are only a couple of "common" drugs used for Dysautonomia, neither of which I can take. After that, you get to play Guinea Pig....that's where I am..and am miserable with it.
Spike

Don't Berate,- Educate!
 
 
Barked: Sun Jul 5, '09 4:13am PST 
I've been a guinea pig for the past however many years. I have been on probably 40+ medications at this point, none of which have worked because of one reason or another. You'd think this might be a clue to some of my HCPs... It really does suck, especially when I'm so sensative to medications. I know you're having trouble with it too, and I think I read somewhere that for dysautonomias, it's rather common. Of course, it might still not be a dysautonomia for me and I might just be crazy... Hmm, I just realized we don't have an angry icon.

In any case, I've been the guinea pig, and if I have to be again (oh, wait, I still am) I'd rather be trying to find an answer with the correct diagnosis.

Kipper

*hiccup/burp*
 
 
Barked: Mon Jul 6, '09 10:23pm PST 
Maybe I have a tyroid problem....... lithium messed me up so bad........
Spike

Don't Berate,- Educate!
 
 
Barked: Tue Jul 7, '09 2:41am PST 
It's possible. Have you ever been tested? I know you said you have a hormonal problem (sorry, don't remember exactly what it's called), and that can explain it too. If you haven't been tested recently (within the last year) then you should absolutely get tested again. It'll go a long way to helping you get on medication that works.

And, actually, to be honest, your symptoms don't exactly fit with bipolar disorder. I'd be more inclined to say you have another disorder that has similar symptoms. Maybe cycloclamedic disorder, or the other one I can't think of the name for. People who have those disorders are commonly misdiagnosed as bipolar, especially because the diagnosing doctors often don't know the difference and assume bipolar is more common.

I'll see if I can find my psych book that has all the cyclic mood disorders easy-listed. If I do, I'll tell you which one it is I'm thinking of.
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