Barked: Tue Jun 9, '09 5:13am PST |
 |  |  |  | A few months ago, I went to the Amen Clinic up in WA. I was extremely unimpressed with the doctor, especially after he put me on something he knew to make me sick. After having a long talk with the NP that had taken me off of the stuff that made me sick, I concluded that the doctor is an idiot (what a surprise) and that I would rather be treated by the NP. She really seems to have a grasp on reality and what needs to happen. She took me off everything the doctor had put me on and started me on something new. Of course, I had a bad reaction to it. This is on top of it rendering my bc completely ineffective... (I have really horrible periods and is the main reason I'm on bc.)
So this morning I called her and was preparing to be very upset with her for not telling me that this new medication would mess with my bc. When I told her this, however, she got very puzzled. It's NOT supposed to mess with bc. She wanted to know what else was going on. I mentioned stomach problems, among other things, and she asked for how long. After I told her my whole life, she became even more puzzled. Now, I've been keeping a running record of various symptoms that I've had throughout my life that all of my medical professionals I've seen have attributed to my psychiatric problems. Well, this NP doesn't think that's the case. She thinks it's that reverse rather. She is taking me seriously. I shouldn't be amazed at this -- doctors should always listen to their patients. But this is the first time in my lifetime I am being taken seriously about my myriad of problems. I sent her a very long list with my symptoms. I haven't heard back from her yet, but I expect that it might take a ittle time. She mentioned maybe just sending me to the local hospital for some tests is her theory is correct.
Now, she told me what her theory is but only after I told her something. I've been talking with Harley about her condition. It sounded so familiar, so I started researching it some. It turns out that this would explain everything, including my psychiatric problems (one of the readings that had symptoms lists said that these problems are cause but not psychiatric in nature; would my mother love that?) and things that I never really thought of as symptoms. This that are just quirks about me. Things that I have listed in rants from years ago as causing me problems and are big indicators for this. Anyways, I told her about Harley and what I had found out about this condition. She was quiet for about half a moment before she told me that it was the same thing she was thinking.
So... I'm stunned. Very happy, but stunned. The end of all of this is in sight... Maybe. I feel like I don't want to jinx it by saying that I feel for sure that this is what it is, but the truth is that I do. It just matches so completely. Of course, alternate side of that is that I feel like I'm being hypochondrical -- I know someone who has this so it must be what Ihave too. I'm excessively worried what pups here would say if I came out and said I have the same thing Harley does. I realize how stupid that is, but it's the truth. I guess I'm very anxious about this, about knowing, about being able to say for sure what my problem is, but also about what if it's not. What happens if this isn't the answer, that I'll have to start looking again, that I'll never find an answer. I'm also anxious about the condition itself, the progression of it. Harley has symcope; I don't. Many times I feel like I'm about to faint or just fall over, but I haven't yet. I know not everyone with this condition has syncope, but I also know that it can progress to it and that usually starts at the age or a little older than I am. At the same time, I almost wish it would. I know how rediculous that is, but it's like then "they" would see the effect of what I have.
Anyways, I needed to tell someone, to share my happiness and anxiety with someone who might understand... |  |  |  |  |
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