Life as a princess

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1/10/2012 MARIELLE UPDATE

January 10th 2012 2:42 pm
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WOOHOOO.. THE PRAYERS ARE WORKING .. WE WILL LET YOU READ THE LATEST FROM MARIELLES JOURNAL !
Hi all, today was a fairly easy day. We took cousin Andrea with us so she could meet the clinic staff and hear what we hear and after Marielle's dose of the vincristine IV push (that's what they call it) we were able to go home. I just called to get the lab results for the morning blood work & they were fabulous!! I'll post 2 numbers to show why I say fabulous...her platelets are 131,000, normal is between 150,000-400,000. She would get a transfusion if under 45,000, last week was 87,000 and she last got a transfusion on 12/27 when it was only 36,000. That means her body is producing well on it's own!! Yippppeee....that bad blood is slowly being conquered! The other number is her ANC (absolute neutrophil count), this is the number of white blood cells that fight infections, normal is between 500-1500, the doctors are happy if it's over 500. Drumroll please........today it is 1540!!!!! Last Tuesday it was 800, on 12/27 it was only 300. This means that she is not at a high risk of getting an infection today!! Keep those prayers coming...they are obviously working!! Oh yeah and just wanted to mention, Marielle knows how to "pay it forward" already; Ms. Linda, our new friend in Michigan sent Marielle a new knitted hat.it was a little too big and Ms. Linda said to pass it on, so this morning Marielle gave it to her new friend Ms. Becky at the clinic and she said she knows just the teenager who would love to wear it, who is also a current chemo patient. God is good!! Thanks to you all for EVERYTHING! Tomorrow morning at 8:30 Mommy's friend Ms. Fern is going to cut Marielle's hair and she wants to donate it, then Thursday she gets her wigs. Yipppeeee, I think we'll all have a blue or purple streak in our hair after that, we'll see what she wants us to do.

KEEP THE PRAYERS COMING !!

BUTTERCUP & MOMMA PAT

 

1/5/2012 MARIELLE UPDATE

January 5th 2012 3:06 am
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WOOHOOO !! Marielles treatment on Tuesday went so well ! She only has to have the one treatment this week ! She wanted to go to the movies and her Dr.'s gave her permission to go ! They went at 9:30 at night in order to avoid the crowds due to her weakened immune system ! Looks like all the prayers are working .. please keep them coming ! Its a long road .. actually a treatment plan spanning over 2 1/2 years !

Grateful for the prayers,
Pat & Buttercup

 

1/2/2012 HAPPY NEW YEAR !

January 2nd 2012 2:50 am
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ANOTHER YEAR WOWS !! WISHING EVERYONE AN MOST HAPPY , HEALTHY NEW YEAR ! NOW JUST A QUICK UPDATE ON MARIELLE. SHE GOES BACK TOMORROW FOR ANOTHER CHEMO TREATMENT. SO FAR SHE IS TOLERATING THE TREATMENTS WELL AND HAS A MEGA APPETITE ! THEY TOLD HER MOMMY THIS WOULD HAPPEN , IT IS A RESULT OF THE STEROIDS SHE IS ON ! SO IF YOU WOULD CONTINUE THE PRAYERS WE WOULD REALLY APPRECIATED IT .!

HAPPY NEW YEAR !
BUTTERCUP & PAT

 

12/29/2011 Marielle First outpatient treatment

December 29th 2011 2:25 am
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Marielle had to be at the University of Maryland at 8:30 a.m. Tuesday morning for her first out patient treatment. She needed to get platelets and then she was given medication to make her sleep and was given chemo treatment in her spine again .. she seemed to handle it well , went home starving and ready to eat ! Yesterday her mommy said she was doing well, eating and drawing and watching T.V. We don't know how much we will be seeing her .. one she really needs her rest and 2 , her immune system is very weak .. so mommy and her mommy keep in touch trough text messages and phone ! It looks like all the prayers are working .. so keep them coming .. it is going to be a long year ahead !

Buttercup & Pat

 

12/27/2011 SO WHAT DID SANTA PAWS BRING YA ?

December 27th 2011 3:37 pm
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WOOHOO .. It is Tuesday after Christmas and mom is finally catching up ! What did Santa bring you ... well , i got 2 new coats ( one from Bailey Thank you so much !) .. a new sweater , a new sock monkey from LP .. Thanks LP , a new squeaky bone from The Sweetiepies , Thanks Sweetiepies, a beautiful framed picture of my self from the Boyzz, Thanks Boyzz .. mommy loves it ! a new pink stuffed squeaky and a warmer for the car seat or my stroller from Raja .. Thank you Raja ! I think i was a pretty good girl ! Mom plans on getting a picture soon of me with my stash ! Did i tell you i had an ear infection .. well i never got my Christmas grooming because mommy was and still is putting medicine in my ear .. so we will get a photo soon. Only one more day on the ear meds !
Marielle went today for her first out patient treatment. She had to have another spinal tap where they put the chemo right in her spine.. so she wasn't able to eat this morning.. mom received a text message saying all went fine and she was starving ! She did have to get platelets before her treatment so this extended the time they were at the hospital. I'm sure everyone will be exhausted this evening ! Thank you once again for the out pouring of love and support . We wish each and every family a most blessed , happy , healthy New Year !

Buttercup & Momma Pat

 

12/24 CHRISTMAS EVE !

December 24th 2011 2:27 am
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WOOHOO SANTA COMES THIS EVENING ..BUT THE BEST GIFT IS MARIELLE GOT TO COME HOME FOR CHRISTMAS!!! YIPPEEEE !! SHE HAD HER SECOND CHEMO TREATMENT WITHOUT ANY REACTION AND HER PLATELET COUNT WAS GOOD SO THEY RELEASED HER LAST NIGHT. I KNOW THEY ARE ALL EXHAUSTED AND SO HAPPY TO SLEEP IN THIER OWN BEDS.. HOPEFULLY EVERYONE GOT A GOOD NIGHTS SLEEP . WITH THE ANTICIPATION OF SANTA COMING I'M SURE IT WILL BE HARD TO KEEP HER RESTING TODAY! WE WISH EACH AND EVERY ONE OF YOU A VERY BLESSED CHRISTMAS AND A HAPY HEALTHY NEW YEAR ! THANK YOU AGAIN FOR ALL THE PRAYERS, ROSETTES , POTP AND SPECIAL GIFTS !

MERRY CHRISTMAS.
PAT & BUTTERCUP

 

12/22/11 Marielle update and Hubro update

December 22nd 2011 3:43 pm
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You can follow Marielles journey back to good health here

http://www.caringbridge.org/visit/marielleford529.. but last night they had to change her pic line because it became blocked. She had many visitors last night and slept until 10:30 today . She will get another chemo treatment tomorrow and the social worker explained to her how the treatment would effect her.... losing her hair and she will get a big belly like Santa.. she seemed to take it ok. We aren't counting on her being home for Christmas so if it does happen it will be a blessing. Keep her in your thoughts and prayers .. it is a long journey .. but we do think she will recover and be amazing as ever !


Now the hubro decided to cancel his oral surgery until Jan.9.... he wanted to get through the holidays ... AMEN ! so we will post an update on that when the time comes..


Two days til Christmas !!!

Love , Bcup & Momma Pat

 

12/21/11 Marielle update

December 21st 2011 2:53 pm
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Mom went to visit Marielle today after her first blast of chemo which was done yesterday and so far no reactions... she beat mom 3 games of TROUBLE and 2 games of OLD MAIDS !! .. She was getting tired so mom left .. today was the first day mom had to mask up because of Marielles compromised immune system... Friday she will have another chemo blast .. so continue the prayers .. they call this an induction series of treatment . If you would like to follow Marielles journey back to health you can by going to this link
http://www.caringbridge.org/visit/marielleford529

T hanks everyone !
Pat & Buttercup

 

12/21/11 Marielle update

December 21st 2011 1:41 am
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What a brave little girl .. yesterday Marielle had her pic line put in her chest to receive her treatment . Of course as you know , no food or water before anesthesia .. she was so thirsty and hungry .. she said to her daddy .. is it ok if i just drink my tears ... * sob, sob , daddy had to leave the room* the procedure went fine and they gave her what they call a chemo blast in her spine. This leukemia can travel the spinal cord and effect the central nervous system. Lucky for her so far no sign of cells in the spine .. but they want to protect that . If the cells travel through the spine they attack the brain which would require radiation. So far they aren't talking about any radiation ! Thank god ! Her plan of treatment is 4 weeks of aggressive chemo 2 x a week. We are praying that on Friday if things go ok she will be home for Santa ! Keep praying .. and Thank You all for the Rosettes, POTP , and prayers !

Buttercup & Momma Pat

 

12/20/2011 Marielle update

December 20th 2011 3:40 am
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Mom and her sister and Marielles Grandmom spent the day with Marielle and her mommy and daddy yesterday. Marielle had her bone marrow biopsy and spinal tap..what a brave little girl and a great TROUBLE GAME player .. she beat my mommy 4 games !!!! It confirmed her diagnosis's of ALL- acute lymphatic leukemia .. Today she is having her port put in and starting her chemo treatment. She will endure 35 days 2 times a week of chemo. We Thank each and everyone of you for all the prayers, rosettes , love and support . This is just devastating for our family and i know many of you have gone through similar things so you know what we are dealing with .As mom and Grandmom where leaving the hospital Gmom didn't want to take the elevator . So mom said than you will have to do the steps... she said no problem . As gmom was bragging about being able to do 5 flights of steps .. she tumbled down the last flight of marble steps. OH MY GOD .. she banged up her leg and knee, shoulder and hit her head... so hospital protocol is you had to go to the ER to be checked out which is a good thing.. after xrays and cat scan .. she is ok .. just bruised and battered ... geeze what a day ! Mom says how many more days left in the horrible year ! Seems like we are always complaining here .. Thank dog you all have big ears ! LOL !!! Again .. Thank you all for everything and keep Marielle in your prayers !

Buttercup and Momma Pat

 
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