Life as a princess

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9/14/2012 Fund Raiser event for Marielle

September 14th 2012 1:29 am
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We are putting together a fund raiser to celebrate living with Marielle. The event is being held October 14 from 12-6 at the Knights of Columbus located on Solomons Island Rd. Edgewater Md. Food, live music, raffles, silent auction and fun for the children ! It should be a GREAT EVENT ! If anyone is interested you can visit FB for more info !


https://www.facebook.com/events/119759024838414/

Th anks everyone ,
Buttercup & Pat

 

9/7/12 Marielle update

September 7th 2012 1:01 am
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Hi everyone .. sorry we have been lack on posting here .. but it has been for a good reason ! Marielle has had a good long stretch of feeling well... she even got to go to the beach , and back to school on the first day. She has been in the hospital this week. She was supposed to have the 4th high dose methotrexate treatment but she woke up with a fever , so she was admitted and has been getting antibiotics.The good news is that the fever is just from a nasty summer cold, no infections! We think she is coming home today and they hope to be able to give her the treatment next week once her numbers improve. We are planning a fund raiser to off set her medical expenses . A local restaurant is helping sponsor it and there is a meeting this Saturday to get all the details .. we will keep you posted. Once again we thank you all for the continued prayers and support !

Pat & Buttercup

 

8/14/12 My Dear Dr. Ferguson

August 15th 2012 2:46 pm
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Oh My .. it is with such a heavy heart that we found out today that my cardiologist Dr. Ferguson passed suddenly in his sleep on Monday ! We are just devastated ! He was such a young , vibrant man .. that honestly loved each one of his 4 pawed clients ! He had such a way with the parents to make them feel so comforted in the treatment of their fur babies ! He leaves behind his wife and 3 young darling children .. and his companion * WINSTON* his westie ! Please keep his family in your thoughts and prayers. Mom will be attending his service on Thursday evening .. and Gloria his secretary will be helping mom with picking my next cardiologist !

Marielle went back into the hospital yesterday for the third round of her intensive chemo treatment . So far things are ok .. so say a wee prayer for her too !

God Bless,
Pat & Buttercup

 

8/14/12 My Dear Dr. Ferguson

August 14th 2012 6:09 pm
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Oh My .. it is with such a heavy heart that we found out today that my cardiologist Dr. Ferguson passed suddenly in his sleep on Monday ! We are just devastated ! He was such a young , vibrant man .. that honestly loved each one of his 4 pawed clients ! He had such a way with the parents to make them feel so comforted in the treatment of their fur babies ! He leaves behind his wife and 3 young darling children .. and his companion * WINSTON* his westie ! Please keep his family in your thoughts and prayers. Mom will be attending his service on Thursday evening .. and Gloria his secretary will be helping mom with picking my next cardiologist !

Marielle went back into the hospital yesterday for the third round of her intensive chemo treatment . So far things are ok .. so say a wee prayer for her too !

God Bless,
Pat & Buttercup

 

8/5/12 Life gets crazy !

August 5th 2012 3:25 pm
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Sorry we haven't been around as much as we like .. but life gets crazy now and than and ours sure has. I had to go to emergency last night as i had another fainting episode and wasn't very responsive afterwards.. mom and dad took me to get checked out and by the time i got there i was more alert. They checked me over .. my blood pressure was good and i passed my physical exam which made them believe that with my heart condition that this was a syncopal episode.( fainting) I am still trying to recover , very quiet today ..and actually had a tummy ache to boot .

Now good news.. Marielles numbers were good at clinic on Friday and they gave her the approval to go to the beach for some R&R and FUN ! They have a friend that has given them the use of their condo .. soo woohooo ! we are excited for them !

Thats about it for now.. we miss you all and hope to get back playing more often soon !

To my DEAR PAL ABBY that just crossed the bridge.. til we meet again .. i am sending prayers and love to your mommy and daddy and hope they find the strength they need to get through this most difficult time !

R.I.P. sweet Abby !

Love,
Buttercup & Momma Pat

 

7/26/12 Marielles update from her mommy

July 26th 2012 1:28 am
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Hi All,

Well we're not home yet. Her body finally cleared the chemo today-result of the 11am blood draw. The bad news is that she spiked a fever Monday night, which adds 48 hours to our stay regardless of the chemo clearing. Yesterday the mouth sores were starting, today they are present but not nearly as bad as last time. She is getting a blood transfusion in a few minutes and just had a hard time taking the Benadryl and Tylenol as required before they can start the blood.

That is the toughest part of any hospital stay for me, is when she begs me not to make her takethe oral medications. She knows I won't give in but puts up a great fight trying to convince me otherwise. That's when I really feel the presence of God holding me in His hands saying "stay strong My child, I am here" and I know He is!!!

Her hair is coming in nicely, a brunette like her Mommy but she really wants her blonde hair back. She will still be getting the Vincristine for the next year, so it will continue to fall out after those treatments, but the peach-fuzz is adorable in the mean time.

She has eaten very little this stay but as long as she can eat we don't have to worry about the TPN-IV nutrition (and a longer stay). She had her favorite creamed corn and mashed potatoes last night. 1/2 of a banana and 2 french toast today. Now asking for pancakes, looks like Mom may be taking a walk or at least googling the closest iHop or Denny's ;0)

That's it for now, have a good night all and we'll update tomorrow hopefully with news that we're going home.

Thanks for the prayers folks !,
Buttercup and Pat

 

7/20/12 Marielle update

July 20th 2012 6:22 pm
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Marielle had her kidney procedure last week , and on Wednesday of this week they did a nuclear test that determined that the procedure was successful. She went back into the hospital today for the 2 of 4 high dose chemo treatments. Normally your body should be able to push what isn't used out within 3 days .. but last time it took her body 10 days along with horrible mouth sores and nausea as a result. They are hoping that with the kidney working better that her body will push it out faster this time and we are praying that she doesn't get the horrible mouth sores and nausea !!! These past few weeks she has been able to be some what of a little girl again. She had permission to go to day care with her friends , to go swimming, and to go to movies, and it has allowed her mommy to get a few hours in at work. We continue to thank you all for following her through this journal and for your prayers. Oh .. and we must tell you that her grandma has been teaching her how to sew and she is designing clothes for her American doll !

Thanks so much again ,
Pat & Buttercup

 

7/6/2012 Marielle update

July 6th 2012 2:44 pm
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We are happy to report that Marielle is home , the mouths sores from the last high dose chemo have finally gone and their air conditioning and power has been restored. Her spirits are good.! They still haven't done the kidney procedure as her ANC numbers ( rate of infection .. must be 1000 or higher) and hers are not high enough .. this is something your body must produce on its own. So for now she is eating good , going to the movies , and doing child things. This hospital stay was just over 2 weeks.. so as you can imagine it gets old for her and her mommy !

The storm that rolled through our area last friday evening caused so much damage and so many folks have been without power.. we were very lucky and never lost power , thank god ! .. but a week later there are still many residents that are still without ! We have had a week of 95-100 degree days with good ole Maryland humidity ... tomorrow they are predicting the worse of 105.. so we are staying in and staying cool !

Thanks again for all the comments , prayers and rosettes .. hopefully everyone had a great 4th of July !

Stay cool,
Buttercup & Pat

 

Marielle update 6/26/2012

June 26th 2012 4:35 pm
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It is now day 9 since Marielle went into the hospital for the high dose chemo treatment. It has taken her body longer than expected to flush out the chemo ..but finally today the numbers came back that it is gone . Her mouth is filled with nasty sores that hurt and have been bleeding, as result of the chemo. They are giving her morphine every 6 hours for the pain. She hasn't eaten since they went into the hospital 9 days ago so they started her on IV nutrition. She isn't talking as it hurts to much so she is using a caulk board. They hope that in a few days she will go home. Once again we thank you for all the prayers and continued support !

Pat & Buttercup

 

6/18 from Marielles journal .. just posted from her mommy !

June 18th 2012 12:29 pm
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Hi All,
Well we were here this morning at the clinic at 8:30am, didn't get the blood work back until almost noon, her ANC was perfect; 1044.
We came down to the PACU and were prepped for the spinal tap methotrexate. She went in with a good attitude and now is sleeping next to me in the recovery area.
We will be here for another 3-5 days depending how quickly her body flushes the chemo out.
Now for the even better news.......while we were in the clinic her kidney doctor came in and had a consult about the kidney surgery/procedure. He said he had spent more time studying her films, tests and labs and has determined that the best plan is to do a less-invasive procedure where they will go in the ureter puncture a hole and that could "do the trick".
This is good news because what we had already discussed was a much more involved surgery 3-4 hours, that could have resulted in a 4-5" scar, a drainage tube and possibly a 4-5 day recovery time. Now this is an out-patient procedure and is tentatively scheduled for July 2nd, and be only about 45 minutes. If this goes as planned once the surgery is done that ureter seal blockage should be cleared and the enlarged tubing should shrink and quite possibly have no further problems. That is what we will hope for and trust her body to cooperate ;0) We know God is protecting her and will heal her!
With todays' spinal tap chemo, her body will rid itself of the chemo by a rush of fluids over the next few days and she will be encouraged to pee at least every 2 hours. Her ANC will drop to zero in about 7-10 days and this will possibly be the worst her body will feel, but we are so grateful to have been able to get this done today and then to have also gotten the good news about the kidney.
We all had a fabulous weekend, went to see 3 movies!! Men in Black 3 in 3D, Madagascar in 3D and for Father's Day took Daddy to see the Avengers, he loves Captain America!
Marielle had made him cards from her and Hudson but then she made him the cutest coupon book for different things like 1day of total control of the remote control for the TV, homemade dinner, afternoon to nap, weekend to sleep in, dessert of his choice, and 2 blank coupons to fill-in anyway he'd like.
Lastly, Hudson lost his other front tooth last night and of course the Tooth Fairy came. He actually asked me to pull it out since he was starting to look like snaggletooth. Oops and one more thing, this morning when we were getting ready to leave Hudson said to Marielle, "have a good day at the hospital today Marielle." mike and I just looked at each other and were both in awe of his kind spirit and love for her! He was excited for himself because today was his first day back to Ms. Carol's which is where he'd go everyday of the year if he could! He gets to see Ms. Carol and his friends since birth, Sarah and Max!
That's it for now, sorry for such a long post. Have a great week everyone! We Love You!!

 
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