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Life as a princess

6/18 from Marielles journal .. just posted from her mommy !

June 18th 2012 12:29 pm
[ Leave A Comment | 7 people already have ]

Hi All,
Well we were here this morning at the clinic at 8:30am, didn't get the blood work back until almost noon, her ANC was perfect; 1044.
We came down to the PACU and were prepped for the spinal tap methotrexate. She went in with a good attitude and now is sleeping next to me in the recovery area.
We will be here for another 3-5 days depending how quickly her body flushes the chemo out.
Now for the even better news.......while we were in the clinic her kidney doctor came in and had a consult about the kidney surgery/procedure. He said he had spent more time studying her films, tests and labs and has determined that the best plan is to do a less-invasive procedure where they will go in the ureter puncture a hole and that could "do the trick".
This is good news because what we had already discussed was a much more involved surgery 3-4 hours, that could have resulted in a 4-5" scar, a drainage tube and possibly a 4-5 day recovery time. Now this is an out-patient procedure and is tentatively scheduled for July 2nd, and be only about 45 minutes. If this goes as planned once the surgery is done that ureter seal blockage should be cleared and the enlarged tubing should shrink and quite possibly have no further problems. That is what we will hope for and trust her body to cooperate ;0) We know God is protecting her and will heal her!
With todays' spinal tap chemo, her body will rid itself of the chemo by a rush of fluids over the next few days and she will be encouraged to pee at least every 2 hours. Her ANC will drop to zero in about 7-10 days and this will possibly be the worst her body will feel, but we are so grateful to have been able to get this done today and then to have also gotten the good news about the kidney.
We all had a fabulous weekend, went to see 3 movies!! Men in Black 3 in 3D, Madagascar in 3D and for Father's Day took Daddy to see the Avengers, he loves Captain America!
Marielle had made him cards from her and Hudson but then she made him the cutest coupon book for different things like 1day of total control of the remote control for the TV, homemade dinner, afternoon to nap, weekend to sleep in, dessert of his choice, and 2 blank coupons to fill-in anyway he'd like.
Lastly, Hudson lost his other front tooth last night and of course the Tooth Fairy came. He actually asked me to pull it out since he was starting to look like snaggletooth. Oops and one more thing, this morning when we were getting ready to leave Hudson said to Marielle, "have a good day at the hospital today Marielle." mike and I just looked at each other and were both in awe of his kind spirit and love for her! He was excited for himself because today was his first day back to Ms. Carol's which is where he'd go everyday of the year if he could! He gets to see Ms. Carol and his friends since birth, Sarah and Max!
That's it for now, sorry for such a long post. Have a great week everyone! We Love You!!


Leave A Comment | 7 people already have

Barked by: JAKIE, FOREVER LOVED (Dogster Member)

June 18th 2012 at 1:35 pm

That's fantastic!!!!
Barked by: Amazing Grace (Dogster Member)

June 18th 2012 at 2:35 pm

This is Awesome and Pawsome!!! We are so Happy! Sounds like Father's Day was a winner too!

keeping you in our thoughts and prayers,mazy and gma keda
Barked by: ♥ George P.P.Pie *SHM* (Dogster Member)

June 18th 2012 at 3:25 pm

Wonderful Buttercup and I agree Father's Day was a winner! Praying always for Marielle. xoxo
Barked by: Abbie (Dogster Member)

June 18th 2012 at 6:35 pm

Glad you had a great Father's Day.
Barked by: Coco Rose (Dogster Member)

June 18th 2012 at 7:24 pm

This has been a long journey and we are amazed at how much Marielle and her family have had to endure. It's nice to read some good news for a change. Our continued prayers are with her.
Barked by: Abby - Forever Loved (Dogster Member)

June 19th 2012 at 6:49 am

Good news about Marielle. We will continue to keep her in our prayers.
Barked by: Hershey (Dogster Member)

June 26th 2012 at 3:16 pm

We're so happy to hear the bigger surgery can be avoided! Congratulations to Hudson fur his tooth, too!

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