April 21st 2012 5:29 pm
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This is so tuff.. i know many of you out there have a family member or your selfs that are fighting this awful disease . WE send prayers to you all also !Please continue to send prayers to Marielle !This is from her mommy
Well Marielle's creatinine went from 5.4 yesterday to 6.2 today, but on a graph they are seeing the increase slowing down. Her ANC was up to 1008 yesterday,yipppeeee, we haven't gotten it for today yet but they are expecting it's even higher. She received a 1/2 unit of blood last night & was restricted to a liter of fluids all day, which included blood products, IV fluids and drinks. Today they have lowered that restriction to 500 ml. The problem is that the kidneys are working too hard just to eliminate the fluids present, so by restricting the fluids the kidneys won't have to work so hard.
The plan now is to watch this number (creatinine) tomorrow morning & Monday morning and if it hasn't gone down they have her scheduled for 11am hemo-dialysis, which will be thru her juggler vein, and the bone marrow test at the same time. This will reduce the number of times she will be sedated.
They won't know until afterwards how many times or for how long the dialysis will take place. We are taking this one day at a time.
There was no visit from Katy Perry last night, or phone call but our friend Jon got something autographed and that we are grateful for, I'm sure she was disappointed but as we all know she is a trooper and got over it before she even went to sleep.
So far this morning was a little rough, there was bleeding at the PICC line site and it had to be re-dressed twice . She is resting now and hopefully will have a quiet day. This morning was one of the toughest for me watching her struggle and hurt just breaks my heart! She said "you DON'T know what it feels like" and in tears I told her that all Mommies feel everything their babies feel and it hurts me for her. She saw that I was being sincere and that calmed her down, she held hands with me and peace entered her heart and mind.
We will do nothing or whatever she wants today, my guess is another movie-a-thon day.
I can't thank you all enough for the continued prayers, God and your prayers are what is giving me the strength to help her, thank you, thank you, thank you!!
Have a great restful day all! xoxoxox
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Praying for Marielle ((( hugs )))
Praying for Marielle AND HER WHOLE FAMILY. Thank you for keeping us updated. Our thoughts and prayers are with this young lady every single lady. She is a trooper!
hugs and kisses,mazy and keda
oops,sorry meant Day and it says lady...think my typist is tired...
sending so many prayers to brave Marielle and her loving family.