February 3rd 2012 5:20 pm
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Hi everyone.. First let me say that you will never find as many caring folks than there are right here on dogster. The out pouring of love, support, cards, presents that have been sent to Marielle and her brother Hudson has been truly awesome ! You all know who you are and we will post an official Thank you update soon ! Marielle had a rough long day today .. as it was another bone marrow biopsy day. They will get the results on Monday or Tuesday. Heres what her mommy wrote today
Good morning all,
We made valentines cookies last night for the Oncology staff and brought them with us this morning, of course another one of her ideas. Then Marielle made sure we remembered to bring her bumble bee and butterfly paintings for Ms. Sandra. As soon as we got here the staff paged Ms. Sandra and Marielle gave her the paintings, they were both excited about being able to put them on display for the other kids to enjoy.
At the dentist yesterday they decided after talking to her doctor, that they wait on pulling the tooth until next week. If she got an infection or fever as a result of the tooth getting pulled they would have had to postpone this mornings bone marrow procedure. So that'll be next week.
We won't get today's test results until Monday or Tuesday and all we know so far is that there will be an overnight stay next week that is in the protocol for the next step of treatment. Not sure yet what night that will be, but it will be a busy week. She'll likely get that baby tooth pulled Tuesday around noon then her 1st physical therapy appointment is on Tuesday as well.
That's so far her least favorite topic; exercise. She is very tired from all of the treatments and meds, but she is more than a trooper as you all have already witnessed thus far!
We will update again later today after we're home. Thanks for the continued prayers, we are grateful for each and every one! Have a great Friday!
O.K. So we are in recovery and the bone marrow surgery went great. We were waiting with her in recovery and as soon as the nurse was about to deactivate her port the nurse from Oncology called down & said to draw a tube of blood first to check her electrolytes. Not sure but something in her numbers was "off" and now we are waiting for those results. Talk about putting the brakes on! She had just ate a bagel and cream cheese, we're planning our lunch for Denny's restaurant for breakfast and then they say "wait, you can't leave yet." It should be a short while to get those results then either some transfusion, medicine or release to leave. Of course we hope for the latter. Will post again soon, I sent a bunch of texts out that we were leaving then they came in with this.....oh well at least the chairs in recovery are semi-recliners and Dad can take a nap ;
We made it home after a brief stop at Denny's for a yummy breakfast! Got back just after 5pm, what a long day! We will go back to the pediatric ER Sunday at 9am for a check of her sodium levels, typically they run low while in treatment we were told. Then a trip back Monday morning at 9am to check other levels, these are usually affected when coming off of steroids, which she took the last of this morning until the next round.
She cheered up as the day went on, but just because she knew that she was that much closer to bacon, eggs, pancakes, toast.....oh yeah hash browns....that's it I think and a full belly! ;0)
The doctors said the puffiness will disappear within about a month and she will get her little 8 year old figure back, she could careless.....it's all just a part of her process. There's no doubt this little girl is amazing and I'm not just saying that, I think most of us would have crumbled if going through this but she trusts God and has that child faith that everything is going to be o.k.
Have a restful night all, we will!! After Dad & Hudson go to their Boy Scout meeting that is.....
Truly .. it must be hell to have to watch your baby go through this .. it is hard enough as adults, ... what a trooper .. as we call her * FORD STRONG*
Thank You all for the continued prayers love and support ! We will keep you posted on next weeks treatment.. lets pray this cancer has gone into remission ...
Pat & Buttercup
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You are all so strong - you are right, most would crumble. We wish her sell and pray every night for Marielle.
Speaking of Denny's - I love that place, I get the $4 deal and I just love it!
May God Bless You and keep you Safe
Your whole family is very strong and it is wonderful for Marielle to have all her family rallying around her and her family at this time. Keeping Marielle in my thoughts and prayers.
Keeping her in our prayers. Love Abbie and mommy Gail
We're praying for you Marielle and hope that you get better soon.
Hugs and kisses,
Coco Rose, Puffy and mom
Thank you everyone.. for the continued support and prayers.. and for following our diary !
Hugs to all,
Pat & Buttercup